โŒ

Normal view

There are new articles available, click to refresh the page.
Before yesterdayMain stream

May is for Lyme and ME and Autoimmune

14 May 2024 at 12:22
What happens when you're an amazing young musical talent who's discovered while busking and then signed to a record label deal but things go terribly wrong and you lose it all. In this case, you spend 8 years searching for a way to not die and then proceed to produce a distinctive track upholding a promise to advocate and support the Millions Missing who are thusly forsaken. This may be the first time any song that brings a story about M.E. and Lyme Disease hits the top 40 of the official charts; brought to us by an independent artist who has been unable to tour.

May is Lyme Disease and M.E. awareness month. There are group of autoimmune diseases with varied and fluctuating symptoms that leave sufferers, their loved ones and health care professionals unsure of diagnosis. What happens to those with Long Covid, Fibromyalgia, Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) or misdiagnosed Lyme Disease when there's no treatment path for a cure or actual diagnosis? Awareness plus advocacy are a start. Valid diagnosis of ME/CFS depends on the rigor of the initial clinical assessment, and the efforts made to exclude other treatable conditions that might be causing the collection of symptoms. If the examination is cursory โ€“ and if the clinician is skeptical, alienated or just plain disinterested โ€“ the "diagnosis" can conclude that the problem is mental health related. Being aware of a condition is a first step towards diagnosis. Lyme disease is endemic in many parts of the United Kingdom and US. If caught early, Lyme disease can be easy to treat. However, complications can occur if the infection is left untreated. ME/CFS affects an estimated 250,000 people in the UK and over one million people in the USA โ€“ this is more than the number with HIV infection or multiple sclerosis. US CDC estimates that about 90 percent of people with ME/CFS have not been properly diagnosed. Other resources Ren's Chapters (1 through 7) outlining his story are posted for anyone interested The film UNREST by Jennifer Brea is about the experience of living with ME available for viewing via multiple platforms. A brief video about the years of the lived experience of severe M.E. by Anil, whose health has somewhat stabilized Jessica Taylor Bearman's book A Girl Behind Dark Glasses is a book about a teenage sufferer
โŒ
โŒ